Links to CyberHearts

There are so many great sites out there.  This list is an attempt to offer resources, information, help, education, and interest.  If you would like you link included on this list, PLEASE don’t hesitate to contact me with your link.  I will be happy to include your site if it pertains to CHD!! njanwardell@msn.com.

www.chdfamilies.org — information, shopping, support, education

www.mendedlittlehearts.org — Education, information, parent matching, events, conferences.

www.savinglittlehearts.com — Tennessee based organization.  Provides information, education, shopping that benefits CHD, care packages and more.

www.livingforeden.com — Paul Cardall’s blog–musician and songwriter who was born with tricuspid atresia.  He recently underwent a heart transplant.  His story is inspiring and helpful for those dealing with CHD.

www.tchin.org — Community of CHD.  Shopping, information, support, education.

www.americanheartassociation.org — Information, great site about different conditions, medical treatment and education.  This link takes you to the AHA for children with congenital heart defects page.

http://www.corasstory.org — This site dedicated to a beautiful five-day-old angel who passed away tragically from an undiagnosed CHD.  Her mother has worked valiantly and tirelessly since her loss to save lives and prevent others from going through what she has gone through.  Links, information, personal stories, and involvement.

http://happymom4life.wordpress.com–This is a site of beautiful baby Alyssa and life with Tetralogy of Fallot.

http://1in100.org — This site is a great site dedicated to raising awareness, passing pulse-oximetry testing legislation, and helping fund research of technology and devices that can save lives.

http://mysonisanangel.wordpress.com–Levi Beers and his wife Tracy and their courageous fight against CHD.  Aidan was only here a short while but he is now changing lives and fighting for others.

http://anniesinmyheart.blogspot.com/–Annie and her beautiful family, fighting CHD.

http://www.bridger-smith.blogspot.com/ — Angel Bridger left behind an amazing mother who blogs here to raise awareness and leave her son’s legacy on the hearts of those who read.

http://www.playroomofhope.com/story.htm–Neveah Wallace was born on Valentine’s Day 2008 with Hypoplastic Left Heart Syndrome (HLHS).  She sailed through her first two surgeries but began to go into cardiac failure before the third surgery could be performed.  She passed away April 26, 2009 at home.  Her parents and siblings miss her deeply and are trying to raise enough money to build a Playroom of Hope for siblings of hospitalized patients at the Children’s Hospital of Wisconsin.  Go here to read Neveah’s story or help the Wallace’s in their cause.

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2 Comments Add your own

  • 1. Gwen Wright-Thornton  |  May 5, 2010 at 3:44 am

    I wonder if someone can tell me how to check on the Quilt peace I had made for myself I have TOF..thank you

    Reply
    • 2. nikki1975  |  May 5, 2010 at 4:29 am

      Hey Gwen,
      Follow this link: CHD Quilt Project and it should take you the FAQ page of the CHD Quilt project. It says it could take up to a year and they usually email you a picture of the block when it is done. There is a place on this page you can email them to ask about your block!! Good luck!!

      Reply

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